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Charlie
By Alison
 
   
 

On the 9th of May 1995, I came into the world with a splash - Mommy gave birth to me in a water pool which she said was an amazing experience! I was called Charlotte Amber Jordan Baker but Mommy has always called me Charlie. My Mommy was very young when she had me but we got on just great. I left the hospital the next day and we went home where Mommy lives with her parents, my Grandma and Grampie and also my Uncle William.

When the midwife came round the next day they realised that I had lost loads and loads of weight and the hospital had forgotten to weigh me before I was discharged. I didn't know how to suck and so wasn't able to get any milk, it took several weeks and half hourly feeds to get my weight up again. After this problem everything seemed fine, I was putting on weight and I was a really good, happy baby, apart from when I had colic! I started smiling at 6 weeks and my naughty laugh soon followed.

At 8 weeks Mommy realised my eyes were always rolling around and I didn't seem to focus on anything so I was made an appointment at the local eye clinic. The appointment wasn't until September but Mommy wasn't too worried because the midwife thought I just had a squint. But when I went to the eye clinic they were very worried I had to go to the hospital a few days later. There they realised that my optic nerves were minute and that's where things all began!

I had to see loads of doctors up at the hospital, have a CT scan and have lots of bloods taken. At the end of it all they decided that I had SOD. About a month later I had my pituitary tested and everything was fine. I was doing really well, I was sitting and rolling over and beginning to chew on rusks and feeding myself by 11 months. I started to crawl in my own funny way with my head on the ground and no hands, Mommy used to call me a bull-dozer!

Then for no apparent reason I started to be sick, I stopped eating and was being sick lots and lots of times even when I was asleep. This went on for about 6 months and although I wasn't eating I never lost weight. Suddenly I stopped being sick as quickly as it started but I still refused to eat and was sick every time I tried. I was diagnosed with Diabetes Insipidus at 18 months but was not treated for nearly a year. I was also very small and growing very slowly.

At about 18 months I became very tactile and oral defensive and I became very distressed at any change of routine or crowded places. I am still like that now although I am much better than I was, but these behaviours have and are still hindering my development a great deal.

I love music and singing and anything like that, and I also love my trampoline, Mommy calls me Charlie Roo because I like to bounce up and down so much! I still wont eat lumps or any food that has a thick consistency but I am beginning to sleep much better. I began to furniture cruise at about a year but I didn't start walking until I was 2, I am brilliant at walking now although I need Mommy's hand in places I don't know. It was a long time before anyone knew whether I had any vision but now they know for sure that I am totally blind in both eyes and I don't have light perception either.

Mommy went back to school when I was about 5 months old which was great because it meant I was looked after during the day by my Nanny (Daddy's Mommy), and she always spoils me rotten. Mommy goes to university now and I go to nursery school which is great fun! I love hugs and being tickled and Mommy says that I have a very cheeky laugh. One of my favourite things at the moment is climbing so I frequently give Mommy a heart attack! I am making leaps and bounds every day and everyone that meets me falls in love with me! I am Mommy's beautiful little angel, Uncle William's sexy babe, Grandma and Grampie's little pickle and Nanny and Grandad's squirmy wormy!

 

 
   
     
 

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