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Emily laughing, her favorite thing to do. Age 4 months.
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Emily laughing, her favorite thing to do. Age 4 months. |
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| Emily Nicole | ||||||||||||||
| By Annette | ||||||||||||||
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On September 10, 1997,
we were given a gift,a gift that only God could give. It was the gift of
a healthy and beautiful baby girl,we named her, Emily Nicole.With Emily
being our first child, we were naturally very nervous but equally as excited.
Things were going great,Emily was growing and doing really well. But at
her 4 month checkup, our Pediatrician noticed some extra movement in her
eyes that he felt should be looked at. He referred us to a Pediatric Opthamologist.
Once we had seen this doctor, he diagnosed Emily with Optic Nerve Hypoplasia,
or ONH. This simply means that her optic nerves did not develop completely.
We have been told that Emily has very little vision and will probably need
to learn Braillle to read. She is also missing her Corpus Callosum, the
connection between her left and right sides of her brain. So far, (knock
on wood), Emily has shown NO signs of this missing connection effecting
her in any way. These conditions have been known to affect the Pituitary
Gland and has been known to cause other serious medical conditions.Praise
God, Emily has shown no signs of any of them. We have started some Physical
Therapy to help catch Emily up on some things like sitting up, rolling over,
crawling,etc. So far, things are going well. Emily is progressing much faster
than I anticipated. We work with her vision on a daily basis, praying and
believing every day that God will heal her eye sight. We may have to help
Emily do things right now, but, Lord willing and faith believing, she will
do it on her own someday.
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This website has been
designed to help empower parents of children with ONH/SOD. All the information
herein is subject to opinion. If you suspect your child may have ONH/SOD
it is recommended that you seek professional advice from a certified pediatric
ophthalmologist. No one individual or company connected with this website
assumes any liability or responsibility |
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