Hi everyone my name is Kade Cameron Hansen. I was born on Jan. 22,1999,I weighed 7 lbs. 1 oz. and was 19 1/2" inches long. My first minutes were a little scary because the cord was around my neck and I wasn't breathing. But the doctor and the nurses handled things and I got my first glimpse of my mommy. She was happy to see me and glad those nine months were over. Our pregnancy was normal but mommy had toxiemia and that was hard on her.

Mommy took me to stay with grandma for the first month. That way grandma could take care of her while she taking care of me. When I was born I had jaundice so mommy had to take me back to the doctor three times the first week. I got better real soon and you can see by my pictures I am absoluetly perfect.

Mommy took me for my regular checkups and the doctor was monitoring the size of my head. It was a little large and my body was a bit short. My eyes were a little jittery and they had a tendency to cross. The doctor told my mommy about nystagmus and thought I might also have lazy eye.

Life was good and I was enjoying being a baby. My mommy and daddy treat me wonderfully. They read and sing to me, take me for walks and are teaching me how to swim. Both of them have a way of getting me to laugh like no one else can.

Kade at 7 months

Kade at 9 months

When I was seven months old the doctor was still monitoring my head size. He decided I should have a Cat Scan. When he called my mommy with the results he said I possibly had SOD. He didn't know alot about SOD so he sent us to Children's Hospital in Minneapolis to see a pediatric neurologist. Then we went to a neuro ophthamalogist who confirmed the SOD.

He told my mommmy that I am blind in the left eye but my right optic nerve looks healthy. The nystagmus does complicate my vision but I can see. I love to look around and see what is going on. I never miss an opportunity to eat, although I do have some difficulty with textured foods.

I had an MRI so they could get a better picture of my head. Recently I saw an endocrinologist so he could set up the hormone tests. He is very knowledgable about SOD and he works with the people from the MAGIC Foundation. He would like my pediatric neurologist to do another MRI and the BAER test when he has me come back for the rest of the hormone tests. I guess that means I'll be busy for awhile.

I love to sit and play with my toys. I can crawl and I am starting to walk if you hold my hands. Mommy is teaching me to talk but I think she is the only one who can understand me. Grandma loves to spoil me and I have her wrapped around my finger. My two uncles and my cousin Austin (he's almost 3) think I'm the greatest.

Grandma reads everything she can about SOD and then shares with my mommy. She says you have all helped her to understand this alot better. I'm glad we all have met so many new and wonderful friends through this support group.

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
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