On September 10,1997 our beautiful baby girl was born. She was immediatly taken to the NICU due to low blood sugar. Little did we know she would spend her first week of life in the hospital. Finally after seven days we were able to take her home. We got to spend five days with her and on the fifth day we had to take her to the peditrician for a normal check-up. There he told us that we would immeditaly have to take her to the hospital because she was dehydrated. Two weeks later, we were told she was diaganosed with septo optic dysplasia, diabetes insipidus, and hypothyroidism. She is now taking ddavp and synthroid. We're not sure at this point how much she can see, we only know that she has some perception of light. At 6 months of age she only weights 13lbs 5oz. Not that it slows her down much. Kaleigh sits with support and can roll from her side to her back. She constantly wants to be held and loved by anyone. Even when she was in the NICU my husband and I would have to search for our little Bug, because there was always a nurse walking around holding her. Every day we are greatful for our beautiful baby girl and her wonderful smile which seems to brighten any room she is in. After all of this, she still has the most sweetest disposition, and is almost always an absolute angel.

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.