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  Download Dr. Mary's handout in PDF format from the conference on the different hormone that affect our children.  
 *  Vision Loss and Autism : Comparisons  in PDF Format. Thank you to Marilyn and Jay Gense for letting us post this at our sight! and to Michelle for finding it for us!!
 * ONH Booklet in PDF Format
 * You can view Dr. Mehul Dattani presentation as a web page, or as  Power Point .
 

Kambree Aaron Wilbanks

By Krisha

This is a story about my little girl....Kambree Aaron Wilbanks. She was born June 27,1999.

I had an awful pregnancy. I vomited the whole nine months. When i finally went into labor, my doctor said I was full blown pre-eclamptic. My blood pressure sky rocketed and I was given an injection of magnesium sulfate. Kambree was in a great deal of stress, but it was too late to do a ceasarean. She was finally born and I didn't even get to see her. I didn't get to have her in my room for 48 hours because I had high fever from the untreated preeclampsia.

We got to go home a couple of days later. Kambree was the most precious little bitty thing....she weghed 6pds. 7oz. and 19 in. long. I had to take Kambree back for her newborn check up. She was admitted to the hospital because she had very bad jaundice.

I ran into one of Kambree's nursery nurses, and she told me "I called and checked on your daughter around midnight because I didn't think she would make it." Kambree had head trauma and was a very sick baby. the two day hospital stay turned into Kambree having to be airlifted to the New Mexico Children's Hospital in Albuquerque....

We were there a month extensive tests were ran and finally Kambree was diagnosed with Diabetes Insipidus. then the most shocking news of all was your baby will have limited vision. I asked....Will she have to wear glasses.....???? But her septo optic dysplasia was in both eyes.....Kambree a little light perception and maybe shapes and shadows in her left eye....

Kambree is 2 yrs. old is very beautiful . She has a great physical therapist and mobility specialist.........They have been a tremendous blessing and help with Kambree...She loves music,swinging, and listening to the wind chimes....and her favorite mobility toy is her push pal....Kambree does hippo therapy and loves her horse Apache...She has extremely good balance and puts all of her trust in us......

Kambree is on two hormone replacements DDAVP and Synthroid....she is still on the growth chart and we praise God she stays on it.....She is just like every other two year old.....but Kambree sees with her heart and her hands.....

We have the most wonderful family...Kambree has a lot of little cousins.....that treat her no different than any other two year old.....they play with her and include her in everything they do....she also has a wonderful Dad who I could not have made it without....and an ornery but precious little brother who is 9 months, his name is Keaton......Her grandparents think she hung the moon....

Well in closing....I have been sad, hurt, mad,and confused......but I am very blessed.....God gave Aaron and I, Kambree for a reason...and I will raise her the best I know how.....I love her more than life itself....she is my little angel....I thank God every day for her.....and pray one day she will see..........But until that day...we will take every step to make her feel normal and very special.....

 
   
   
   
     
   

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.

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