She was a catnapper, 20 minute naps, awake for 2-3 hours. We were on the go from day 2! As time went by she just didn't seem to see. At 2 months I voiced my concerns. At 3 months we were at a local eye doctor and at 5 months at the University of Iowa to see the specialists.

Everything about her was fine except her vision. First it was diagnosed ONH by the eye doctor. Then at 8 1/2 months after a MRI it was SOD, with a missing septum pellucidum. We spent the first year and a half doing test, MRI, EEG, GH tests and thyroid. Nothing else seemed to be wrong.

She seems to be doing great! She is 3 1/2 now. Her vision is better then we could of ever imagined possible. This is the only issue we deal with. She is short in the 5%, but she comes from a long line of short people. She seems to only have one growth spurt a year, and it's in the fall and it's a big one.

I wouldn't trade her for the world. I have learned so much by being her mother. Everything in my life has been a struggle, except getting pregnant and her birth. But it has been that way so that i will fight for her too. I know why God put me here and why I have her. I love her so much.....

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.