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Mishari Al Mohamed
By Wendy Al Mohamed

Mishari was born in the UK by emergency C-Section on 7th August 1995 (5 weeks early) due to a very flat trace on the monitor. He weighed just 3lb 10ozs and spent 7 weeks in the special care unit. He was diagnosed at 2 weeks with diabetes insipidus and at 3 months with SOD, panhypopituitaryism and Moebius syndrome (facial paralysis being the most obvious sign). He is currently on DDAVP, Thyroxine, and just recently Hydrocortisone. He is scheduled to have growth hormone testing this month. We have not yet got an accurate idea about his vision but we know it is fairly useful.

Mishari has the gentlest nature and is content and very happy (so long as you don't try to cut his nails or hair!!) and the silliest things make him laugh. He is extremely sensitive to light and must wear a hat and sun glasses outside (this is partly due to the moebius syndrome as he cannot squint or close his eyes), he looks so trendy. He loves to get under things an since he's got more mobile we never know where we'll find him, and his favourite position is upside down. He is trying to crawl (he does commando style crawling but still loves to get around on his back, much to my disgust as he's got a huge bald patch on the back of his head!). He's happy to walk a little with support but will still not sit unsupported.

Mishari has two brothers, Faraaj 3 1/2 and Talal 1 year, and we all live in Bahrain which is just across the water from Saudi Arabia.



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