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Reagan
Nicole Green was born to her mommy and daddy who eagerly awaited
her arrival on November 18, 2000. Everything was perfect. She weighed
6 lbs5 oz. She was 19 inches long, and scored perfect on her apgar
test Reagan came home to Andalusia , Alabama and the first few months
were bliss, just as we expected they would be. However, when she
was 3 and a half months old, we took her to the doctor because her
daddy noticed that she had a jumping in her eyes' and wouldn't focus
on things in front of her.
That
day in the doctors office was the worst day of my life The doc looked
into her eyes, grabbed her up, and left the room I was scared to
death. Finally, I went out after them. The doctor sat me down and
told me, very bluntly, this may be a minor issue, but I want to
tell you the worst case senario. He said that her problem could
be as small as decreased vision or as bad as brain stem tumors.
Somehow, I managed to hold myself together until I left the office,
then I had a nervous breakdown. I called my husband who was working
a good 30 to 45 minutes away, and told him to hurry home. Hours
later, we
were at Children's Hospital in Birmingham, Alabama, watching my
little angel strapped to a plinth having MRIs, CT scans, and screaming
while they were drawing blood.
Skip
ahead, fortunately we are lucky. My angel only has visual impairments
she is diagnosed with optic nerve hypoplasia. She has little to
no vision in her right eye, and limited vision in her
left eye, but she does wonderfully getting around and attends a
regular daycare, with no problems. We continue to take her every
6 months to the endocrinologist for a full work up. I
am still amazed at how little most Doctors know about ONH.
We did leave Andalusia, and moved to Birmingham, Alabama We felt
that a larger city would provide more choices, better doctors, better
school systems equipped to work with children with visual impairments.
Reagan is now almost 3 years old, and is absolutely wonderful. I
thank God everyday for her, and I don't think I would want her any
other way. I first asked God over and over, why me? Why my child?
Now I just say Thank you God, Why Not Me?? She is the most beautiful,
intelligent, energetic little girl in the whole world, and she has
made our family whole.
Jennifer Green,
mommy to Reagan, almost 3 years old.
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