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Children with ONH may need many special evaluations, tests, and services.
As the parent of child with ONH, it is important to have a health care team that is knowledgeable about your child's condition.
The medical team should include a primary care provider, an ophthamologist, an endocrinologist,
a psychologist, a neurologist, and perhaps a social worker.
During preschool years, your child will need a developmental assessment. This must be done by someone who is skilled in working with children with poor vision. When your child is about to start school, testing for the most appropriate school placement should be performed. All children are entitled to receive education which meets their needs. To start the process for school placement, contact your local elementary school or local center for children with developmental problems (for example, regional center) both in person and in writing. You will need to request an Individualized Education Plan (IEP) for your child. This process includes an assessment of your child by either the school district or a center for children with developmental problems a specific educational program for your child. You will need to let the professionals know that your child has ONH and any other problems. Keep track of all letters and phone calls made to the district or developmental center. If your child is too young to start an in-school program (for example, if he or she is an infant), services may be provided on a weekly or monthly basis in your home via the local developmental disabilities center or visually impaired program. To make your child's educational experience the best it can be, repeat assessments must be done to insure that your child is learning and developing as expected. |
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