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  What's NEW
  Download Dr. Mary's handout in PDF format from the conference on the different hormone that affect our children.  
 *  Vision Loss and Autism : Comparisons  in PDF Format. Thank you to Marilyn and Jay Gense for letting us post this at our sight! and to Michelle for finding it for us!!
 * ONH Booklet in PDF Format
 * You can view Dr. Mehul Dattani presentation as a web page, or as  Power Point .
 

ONH/SOD FAQ's By Kathy Clark Hi I'm Ashley. Come read all about me.

ONH Consulting provides personalized guidance, support, and advocacy services to families of children with ONH /SOD in the United States from the life experience of a professional social worker with this condition. It is the only resource that offers consultation to families and professionals from the life experiences of an adult with ONH /SOD.

Fact Sheet on ONH from Blind Babies Foundation

SOD: Septo-optic dysplasia literature research

Notes that Sheryl took at a conference she attended, that explain ONH/SOD

The Doctor Is In: Optic Nerve Hypoplasia by Lisa Verderber, M.D. Pediatric Ophthalmologist

Great explanation with comparison pictures (ONH)

ONH Booklet
Now you can download and print the entire booklet without having to go page by page!
(You may have to down load Adobe Acrobat if you do not have it already installed on you computer. You may do this by clicking the image.
)

We are fortunate to be able to share the slides shown at the UK Conference by Dr. Mehul Dattani, Clinical Senior Lecturer/Honorary Consultant in Paediatric Endocrinology.
You can view Dr. Mehul Dattani presentation as a web page, or as a Power Point .

   
Endocrine Information and Links

Growth Hormone written by Kathy Clark and edited by Debra Broadwell Jackson and Rebecca B. Saunders

Diabetes Insipidus written by Kathy Clark and edited by Debra Broadwell Jackson and Rebecca B. Saunders

Adrenal Gland Function written by Kathy Clark and edited by Debra Broadwell Jackson and Rebecca B. Saunders

Diabetes Insipidus Foundation Homepage, lots of information as well as an ask the doctor section.

This is a very informative link to a page on the Hypothalamus.

Hypothalamus Very good!

Growth Chart

Endocrine

The Pituitary Network Association (PNA)

Pediatric Endocrinology Nursing Society Web Site

The Endocrine System

 
Melatonin

Melatonin - The Sleep Master An emerging role for this over-the-counter supplement in the treatment of autism.

Read the latest research on Melatonin

 
Autism

Vision Loss and Autism : Comparisons  in PDF Format. Thank you to Marilyn and Jay Gense for letting us post this at our sight! and to Michelle for finding it for us!!

 
Early Childhood and Education

www.firstsigns.org This site for parents and professionals is a brilliant gem for anyone who suspects a child might have a developmental disorder.

www.theideabox.com this is a well indexed activity site with hundreds of games, songs, crafts and recipes for younger children.

www.earlychildhood.com Along with frequently updated ideas to use with kids, you'll find choice articles for professional development and lots of "ask the expert" advice useful for teachers and parents who work with young children.

www.atozteacherstuff.com This is another easily searched forum for people who work with young children. Find lesson plans, articles, tips and links.

This is a great link for social stories and other great stuff: http://www.dotolearn.com/index.htm A web site providing activities to promote independence in children and adults with special learning needs

Closing The Gap

Your Child's best advocate is You, Check out this page to find our your child's educational rights

Family education

Debbie Day's Resources for parents and teachers of blind Kids

Special Education

 
Corpus Callosum Information

A with lots of great links dealing with the Corpus Callosum

Finding the keys to Matthew' a newspaper reprint about a boy with ACC, told by his family.

 
Vision

ONH Booklet

Optic Nerve Hypoplasia

Every link you can imagine on blindness and visual impairment and more!

Vision Severity Rating Scale

Blind resources

Seedling Braille Books for Children

Here is a great site for toys for the visually impaired

Information for the visually impaired

 
Therapies

www.pdppro.com This sight has products and info on courses, such as Oral Motor Assessment and Intervention Debra A. Beckman, MS, CCC-SLP Professional Development Programs.

A great site to find out more information on Sensory Integration Disorder

Information and description on what Sensory Integration is

Sensitivity to Sound Links
http://www.tsbvi.edu/Outreach/seehear/fall97/sensory.htm
http://www.comeunity.com/disability/sensory_integration/sibooks.html

Site about oral motor problems

A site about Music Therapy

A New site on Music Therapy

A great site where you can order MUSIC that help with children in the autistic spectrum as seen on Dateline!

Little Room page

What is Auditory Integration Training?

 
Disability Related Sites

NICHCY

MUMS

The Family Village

Prader-Willi Syndrome Association U.S.A.

The Ramp

Our-Kids support group for parents and caregivers of special needs children

Parenting Special Needs @ About.com

Disability Resources Online From a Parent of a Blind Child

 
Miscellaneous

Check this out, if you haven't already seen it: www.brainconnection.com
Interested in the latest research about how children think and learn, get plugged into this site.

This is a great article about how the brain is supposed to work. There are some very relevant points that can be related to our kids and it explains it in simple English so anyone can understand.
Check it out. http://kidshealth.org/parent/general/body_basics/brain_nervous_system.html

Innerbody

 
 
     
     
 

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.

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