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  What's NEW
  Download Dr. Mary's handout in PDF format from the conference on the different hormone that affect our children.  
 *  Vision Loss and Autism : Comparisons  in PDF Format. Thank you to Marilyn and Jay Gense for letting us post this at our sight! and to Michelle for finding it for us!!
 * ONH Booklet in PDF Format
 * You can view Dr. Mehul Dattani presentation as a web page, or as  Power Point .
 

Hi, I'm  Logan!  And one amazing kid:) come read my story.Sod-l is an email support group.There are Currently 390+ members. We would love for you to join us!
Be prepared for alot of mail! You will find love support and other parents and caregivers who understand.



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Check out the list of Abbreviation and words or phrases that are used often on the email list.

Here is a list of Abbreviations, Conditions and Therapies you may see on the list. Come back anytime to look these up and see what they mean.

Abbreviated Conditions List:

ACC = Agenesis of the Corpus Callosum
ACTH = Adrenocorticotropic Hormone
AIT = Auditory Integration Therapy
BCLP = Bilateral Cleft Lip and Palate
DI = Diabetes Insipidus
DSI = Sensory Integration Dysfunction (officially changed around so as not
to be confused with SIDS)
GERD = Gastroesophageal Reflux Disease
GHD = Growth Hormone Deficiency
HI = Hearing Impaired
OCD = Obsessive Compulsive Disorder
ONH = Optic Nerve Hypoplasia
PACC = Partial Agenesis of the Corpus Callosum
PDD/NOS = Pervasive Developmental Disorder/Not Otherwise Specified
PHP = Panhypopituitarism
PTSD = Post Traumatic Stress Disorder
SID = Sensory Integration Dysfunction
SOD = Septo Optic Dysplasia
VI = Visually Impaired

Conditions, Challenges and Therapies for our Children (combined list):

Acute Hearing
Adrenal Insufficiency
Adrenocorticotropic Hormone Deficiency
Agenesis of the Corpus Callosum
Auditory Integration Therapy
Bilateral Cleft Lip and Palate
Dandy Walker Malformation
Diabetes Insipidus
Epilepsy
Gastroesophageal Reflux Disease
Growth Hormone Deficiency
Hearing Impaired
Hypersensitive hearing
Hypoglycemia
Hypopituitarism
Hypothalamic dysfunction
Hypothyroid
Learning Disabilities (Challenges)
Legally Blind
Obsessive Compulsive Disorder
Optic Nerve Hypoplasia
Panhypopituitarism
Partial Agenesis of the Corpus Callosum
Pervasive Developmental Disorder/Not Otherwise Specified
Post Traumatic Stress Disorder
Rages
Seizure Disorder
Sensory Integration Dysfunction
Septo Optic Dysplasia
Sleep/Eating Problems
Visually Impaired

 

 
     
     
 

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.

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