focus/logo
About FOCUSONH BookletCharacteristicsCommunicate For Support  Medical Articles and LinksResearch NewsletterBirthdaysGlossary Meet our Children Inspirational PoetryFamily HomepagesHelp I Just found out my child has ONH/SODWe love Email  drop us a note:)
   
   
     
ONH/SOD Specific Links    

 
ONH/SOD FAQ's
By Kathy Clark
Hi I'm Mishari come read my story!

Fact Sheet on ONH from Blind Babies Foundation

The Nord Organization SOD Page

SOD: Septo-optic dysplasia literature research

Notes that Sheryl took at a conference she attended, that explain ONH/SOD

The Doctor Is In: Optic Nerve Hypoplasia by Lisa Verderber, M.D. Pediatric Ophthalmologist

Great explaination with comparison pictures (ONH)

We are fortunate to be able to share the slides shown at the UK Conference by Dr. Mehul Dattani, Clinical Senior Lecturer/Honorary Consultant in Paediatric Endocrinology.
You can view Dr. Mehul Dattani presentation as a web page, or as a Power Point .

ONH Booklet
Now you can download and print the entire booklet without having to go page by page!
(You may have to down load Adobe Acrobat if you do not have it already installed on you computer. You may do this by clicking the image.
)

 
     
Endocrine Information and Links    


PIT-Pat UK Pituitary Foundation

Growth Hormone written by Kathy Clark and edited by Debra Broadwell Jackson and Rebecca B. Saunders

Diabetes Insipidus written by Kathy Clark and edited by Debra Broadwell Jackson and Rebecca B. Saunders

Adrenal Gland Function written by Kathy Clark and edited by Debra Broadwell Jackson and Rebecca B. Saunders

Diabetes Insipidus Foundation Homepage, lots of information as well as an ask the doctor section.

Diabetes Insipidus Clinical

Pituitary, Hypothalamus Link

This is a very informative link to a page on the Hypothalamus.

Hypothalamus Very good!

Growth Chart

Endocrine

The Pituitary Network Association (PNA)

Pediatric Endocrinology Nursing Society Web Site

The Endocrine System

 
     
Autism    


More Autism related links than you can shake a stick at!!!

A page with all kinds of links and criteria for the autistic spectrum!

 
     
Corpus Callosum Information    


CORPAL A Support Group for the families and carers of those with Agenesis of the Corpus Callosum, and Aicardi Syndrome

A with lots of great links dealing with the Corpus Callosum

Finding the keys to Matthew' a newspaper reprint about a boy with ACC, told by his family.

 
     
Vision    


ONH Booklet

RNIB RNIB offers practical support and advice to anyone with a sight problem

LOOK The National Federation of Families with VI Children

Optic Nerve Hypoplasia

Every link you can imagine on blindness and visual impairment and more!

Vision Severity Rating Scale

Blind resources

Seedling Braille Books for Children

Here is a great site for toys for the visually impaired

Information for the visually impaired

 
     
Education    


Closing The Gap

IDEA Practices

Spatial Relations and Learning

Your Child's best advocate is You, Check out this page to find our your child's educational rights

Family education

Debbie Day's Resources for parents and teachers of blind Kids

Special Education

Microsoft acsessibility stuff

The Parent Advocate News an online newsletter for parents!

The Council of Parent Attorneys and Advocates (COPAA)

 
     
Therapies    


A great site to find out more information on Sensory Integration Disorder

Information and description on what Sensory Intergration is

Site about oral motor problems

Hippo Therapy Sites
http://www.hugahorse.org

http://www.bcpl.net/~gharris

http://www.sebastianriding.com/index.html

http://www.ariga.com/sandy/sandy.htm

http://members.aol.com/sntrcinlv/sntrc.htm

North American Riding for the Handicapped http://www.narha.org

A resource site for therapeutic riding centers and disabled riders. Stories, photo's, newsletter and discussion forum. Submissions welcome. http://www.if-wishes-were-horses.com

A site about Music Therapy

A New site on Music Therapy

A great site where you can order MUSIC that help with children in the autistic spectrum as seen on Dateline!

Little Room page

What is Auditory Integration Training?

 
     
Disability Related Sites    


NICHCY

MUMS

The Family Village

AAPOS The ACC ListservWelcome Site

Prader-Willi Syndrome Association U.S.A.

Sibling Page

The Ramp

Our-Kids support group for parents and caregivers of special needs children

Parenting Special Needs @ About.com

Disability Resources Online From a Parent of a Blind Child

"DisABLED News Press"

The Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet

 
     
Miscellaneous    


An Atlas of the Brain
, actually a few different views !

Medline

Innerbody

Anatomy

 
     

topica
 Join sod-l! 
       

 

 
     
 

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.

© copyright 2000 - 2006