to the FOCUS Homepage
These pages are dedicated to the loving memory of Joy
LeBaron, Jesse Steven
Dillon Rollins, Jessica
Kennedy, Jacob, Gavin, Alison and Roxi never to be forgotten.
was created to help parents and caregivers with children who
have Optic Nerve Hypoplasia (O.N.H.) and Septo-Optic Dysplasia,
(S.O.D.), also known as deMorsier syndrome . Together, we can
learn more about this rare syndrome and come to a better understanding
of our children.
Family extends around the world. We have support groups in
the UK, Australia, Canada and the US. We offer a Newsletter
and Email support group.
There are currently 400+ parents, grandparents, adults and
professionals who offer their support.
there is a method for every family in the US to participate
in ONH research! This will really help us get a grasp on where
all these cases are and help direct our research focus for
understanding why and how. This really exciting!!!! Click
here for more information.
join our Email support group by signing up at this link to
more information Email us at Support@focusfamilies.org