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  ONH/SOD Information, Education and Support  
 
     
 * Home
 * Our Stories
 * ONH/SOD Library
 * Support
 * ONH Booklet
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 * Research
 * Poetry
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  What's NEW
  Download Dr. Mary's handout in PDF format from the conference on the different hormone that affect our children.  
 *  Vision Loss and Autism : Comparisons  in PDF Format. Thank you to Marilyn and Jay Gense for letting us post this at our sight! and to Michelle for finding it for us!!
 * ONH Booklet in PDF Format
 * You can view Dr. Mehul Dattani presentation as a web page, or as  Power Point .
 
Hi I'm Abby! Throughout these pages you will find pictures of my friends. Clcik on them and read our stories.Welcome to the FOCUS Homepage

These pages are dedicated to the loving memory of Joy LeBaron, Jesse Steven Reilly Hanham, Dillon Rollins, Jessica Kennedy, Jacob, Gavin, Alison and Roxi never to be forgotten.
This page was created to help parents and caregivers with children who have Optic Nerve Hypoplasia (O.N.H.) and Septo-Optic Dysplasia, (S.O.D.), also known as deMorsier syndrome . Together, we can learn more about this rare syndrome and come to a better understanding of our children.

The Focus Family extends around the world. We have support groups in the UK, Australia, Canada and the US. We offer a Newsletter and Email support group. There are currently 400+ parents, grandparents, adults and professionals who offer their support.

Finally, there is a method for every family in the US to participate in ONH research! This will really help us get a grasp on where all these cases are and help direct our research focus for understanding why and how. This really exciting!!!! Click here for more information.

You can join our Email support group by signing up at this link to googlegroups.com.

 

For more information Email us at Support@focusfamilies.org .

 
   
   
 

 

 
   
     
   

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.

© copyright 2008